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  Resources Links

American Society for Neurochemistry - SFG Affiliate

http://www.asneurochem.org
ASN is a professional society for neurochemists and neuroscientists from North, Central, and South America and the Caribbean, whose research concerns the role and interactions of small molecules (proteins, peptides, nucleic acids, lipids, sugars) in the development, growth, function and pathology of the nervous system.


Congenital Disorders of Glycosylation (CDG) Community
http://cdgcare.com/


 
The CDG Family Network - SFG Affiliate
http://www.cdgs.com
The CDG Family Network is a non-profit 501 (c)(3) organization founded by parents seeking information and support for a group of disorders known as Congenital Disorders of Glycosylation. We exchange information with families and physicians, locate new families and raise awareness among the medical community. 


FASEB-RGB-Logo.jpg


Federation of American Societies for Experimental Biology (FASEB) - Official Member Society

http://www.faseb.org
FASEB's Mission is to advance health and welfare by promoting progress and education in biological and biomedical sciences through service to member societies and collaborative advocacy. It is the nation's largest coalition of biomedical researchers, representing 26 scientific societies and over 100,000 researchers from around the world and is recognized as the policy voice of biological and biomedical researchers.




Functional Glycomics Gateway

http://www.functionalglycomics.org/static/consortium/consortium.shtml
The Functional Glycomics Gateway is a comprehensive resource for functional glycomics research brought to you by the Consortium for Functional Glycomics (CFG). Use this site to access our extensive databases, to request CFG resources and services, and to visit our archives of research publications and editorials.




The MHE Research Foundation - SFG Affiliate

https://www.mherf.org
The MHE Research Foundation is a nonprofit 501(c)(3) organization for the support of researchers, families and physicians dealing with (MHE) Multiple Hereditary Exostoses (MO) Multiple Osteochondroma a rare genetic bone disease.



Programs of Excellence in Glycosciences (PEG)

http://pegnac.sdsc.edu/
The goal of the Programs of Excellence in Glycosciences (PEG) is to build investigative capacity in glycosciences, and translate emerging discoveries into potential new diagnostics and clinical applications relevant to heart, lung, and blood research. The Shared Resources Cores funded at each location are tasked with generating glyco-analytical tools as resources to be made available to the entire scientific community as well as developing resources to train a new generation of investigators to be fluent in glycan chemistry and biomedical sciences.

Rare Disease Day - Official Partner with SFG

http://rarediseaseday.us
Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases as a global health challenge. The day is celebrated on the last day of February every year.

 

International Links

 

Portuguese CDG Online Community
http://www.apcdg.com/community.html