Press Release for CDG Grants

June 15, 2018
*New Research Funding Opportunity and Request for Letters of Intent

CDG CARE (Community Alliance and Resource Exchange) is a nonprofit 501(c)(3) organization founded by parents seeking information and support for the group of disorders known as Congenital Disorders of Glycosylation (CDG). CDG CARE is committed to raising awareness, providing resources, fostering collaboration, and advocating for scientific research to advance the diagnosis and treatment of CDG.

We are currently soliciting Letters of Intent (LOIs) for new research grants that are designed to
promote science that will lead to greater understanding, treatments and a cure for CDG.

Proposals that may be supported may include, but are not limited to:

• Basic, translational, or clinical research projects that support investigative approaches to
advancing therapeutic outcomes for CDG.
• Funding intramural and extramural scientific projects that may benefit the CDG

As part of our mission, applications submitted to CDG CARE for grants or cooperative agreements to support any of the above areas will be evaluated for scientific and technical
merit through the CDG CARE Research Committee peer review system.

This grant opportunity is open to all researchers within the United States.

Letters of Intent should be submitted via email to by July 27, 2018.
Invitations for a full application will be sent out to selected LOI applicants by August 8, 2018 and
the submission deadline for the full application will be September 28, 2018.

Letter of Intent Requirements:

The letter of intent is designed to provide a general overview of the proposed research study
with sufficient detail to allow for the evaluation of the scientific merit and feasibility of the
study. Two pages (letter of intent form and research abstract) are required for submission and
additional pages (biographical sketch and publication list) are optional. The abstract should be
limited to one page.

The documents should be in the following format: single-sided, single-spaced, Calibri 12-point
font, 1-2 inch margins all around and with page numbers at the bottom. The letter of intent
should include the following:

Letters of Intent should contain a summary of at least the following items:

• Descriptive title of proposed research
• Brief overview of specific project aims
• Summary of proposed research design/approach
• Name of Principal Investigator, institutional affiliation(s) and identification of
collaborating partner(s)
• Expected significance of the project for the CDG community and how it advances CDG
CARE’s core mission
• Estimated total requested funding amount

Maximum Single Grant Allowed: $50,000 per year
Maximum Length of Grant: Two years

Letters of Intent should be submitted via email to by July 27, 2018.

Additional information regarding qualifying criteria, LOI content and an overview of the selection process may be found on our website at